Textling #94

The failure of Norway’s Rituximab trial is hard to process. Hope is back in the cold room, carcass stripped. Meagre enough to start with, it owes the scant flesh on its bones to the slog of tireless advocates. And now that Unrest is out, mainstream media are taking note. Attitudes may change. Drug treatment options are years away though, and, due to the widely discredited long-term focus on psychological causes, already decades late.

Let me reiterate: Worldwide around 17 million people, adults and children, suffer from M.E. and lead much diminished lives. More than four million lie confined in darkened rooms because they have an illness which has long lacked the boon of biomedical research. If we arranged their mattresses in file they’d make a bluish vein from Britain to Siberia. When a cure is finally found we’ll have the perfect somersault lane.

The Rituximab trial has failed. I am gutted. And so very very tired.

Audio

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